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Episodes

March 23, 2022

Bethany Meloche: The Ride of a Lifetime: Covid and Beyond

Feel the fear and do it anyway. The moment Bethany realized body and mind were sick. Overwhelmed, Anxious, and Depressed. The shocking things people say! Marriage: Support is a 2-way street. In her 30 years on this planet wit...

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March 2, 2022

Psychotherapist Abby Havermann Reveals Key Elements to Raising Happy …

Psychotherapist turned coach, author, and NeuroChangeSolutions trainer Abby Havermann, mom of a child with CMT 2A, focuses on taking charge of her life by consciously choosing who she wants to be every day. Incorporating the ...

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Feb. 9, 2022

Kenny B. Raymond: The Voice of Bona Fide CMT Information

Kenny’s heart-felt narrative reveals the life of the man with a wicked sense of humor and a wealth of CMT knowledge. Despite his CMT-related breathing issues, upcoming foot surgeries, and chronic pain, his deep laughter defin...

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Jan. 19, 2022

Katerina’s Story: Living Life from a New Perspective

Katerina’s CMT symptoms seemed to materialize overnight. As a senior in high school, she went from being active and carefree to living with inexplicable pain and fatigue. Many docs chalked up her complaints to depression, str...

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Dec. 29, 2021

Aron Taylor Uses the Power of Music to Relay His CMT Life Story

Stringing words together in captivating rhyme, CMTA Branch Leader and passionate volunteer Aron Taylor, mesmerizes with his stories of facing the challenges imposed by CMT from a very young age. Aron produced and released sev...

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Dec. 8, 2021

CMTA’s CEO Amy Grey, and Board Chair Gilles Bouchard Share Rocking Re…

CMTA CEO Amy Grey and CMTA Chairman Gilles Bouchard get real and personal as they discuss the CMTA’s ongoing success as the #1 CMT organization globally. This multi-dimensional dynamic duo, with deep roots in the charitable f...

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Nov. 17, 2021

Jeana Sweeney: A Mom on a Mega Mission

Today, Jeana Sweeney is the CMTA’s Director of Development. When her daughter, Rylee, was diagnosed at a young age with CMT, her world shattered into tiny shards of grief. With the support of a loving husband, family, and fri...

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Oct. 27, 2021

Dr. Stephan Züchner: Exciting Genetic Discoveries Lead to Life-Changi…

Genetic genius Stephan Züchner, M.D., Ph.D., is a professor and chair of the Dr. John T. Macdonald Foundation Department of Human Genetics at the University of Miami Miller School of Medicine. His work focuses on identifying ...

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Oct. 7, 2021

BFFs Erin Black and Emmily Stufflet: How To Live well and Thrive desp…

Erin Black and Emmily Stufflet share their unique perspectives on staying positive with CMT. With an emphasis on friendships and community, these insightful young women show how their own personal resilience is interlaced int...

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Sept. 16, 2021

Yohan Bouchard: Epic Battle between Samurai and CMT

Yohan Bouchard was diagnosed with CMT (Charcot-Marie-Tooth disease) at age 7, resulting from a new, spontaneous mutation. With the mind of a warrior and the support of family, friends and the CMT community, Yohan deals with C...

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Sept. 9, 2021

Welcome to CMT 4 Me

CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me provides a platform for people with CMT t...

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