134
June 18, 2025
Be Real Right here Right Now with Jules and Maria Rodriguez Repeat
We invite you this week for ALS awareness month to Listen back to one one of our most emotional episodes episode 84. Be Real Right here Right Now with Jules and Maria Rodriguez. 2020 was a difficult year for many people, a time of fear, uncertainty, and lockdown for Jules and Maria Rodriguez 2020 was a difficult year in a very different way as Jules was diagnosed with ALS a terminal condition with a life expectancy between three and five years. Despite these difficult circumstances the love bet...
133
June 11, 2025
A Graceful journey from Pain to Purpose with Briana Rice
Life has a strange way of giving and taking from us. Briana Rice's life was changed forever from a marathon running biologist to a business woman and pageant queen. On this episode Briana Rice shares her journey surviving a major car accident, her daily challenges dealing with a spinal cord injury a traumatic brain injury and PTSD. We also discuss her work creating a sense of community with blackberry Merlot winning MRS US Woman of Achievement 2025 and so much more. To follow along on her journe...
Guest: Briana Rice
132
June 4, 2025
Celebrating until Further Notice with Sunny Brous
ALS or Amyotrophic lateral sclerosis in its first discoveries was thought of as a disease that could only be contracted by people in certain demographics older, white, male, and that patience only live between three to five years between diagnosis and death. Fortunately for the last 10 years Sunny Brous has been proving that statistic incorrect on this episode join us as we discuss everything from The Ice Bucket Challenge, to how our understanding of ALS has changed over the decades, to her work...
Guest: sunny brous
131
May 28, 2025
Fearless Blooming with Mary Tibbetts
Life can surprise us both in terms of what we can and can't control. Mary Tibbetts was diagnosed with MS in 2024 and had to make the difficult choice to sell her successful flower shop. On this episode we discuss how being diagnosed with a disability can help create a better understand of the struggles others face, the importance of looking after your body and mind, and how to live a Fearless life. To follow along with Mary Tibbetts on her journey as an advocate for people with MS check out her ...
Guest: Mary Tibbetts
130
May 21, 2025
Just One Breath To Progress with Jennifer McKinnon
Born in the late 1970s Jennifer McKinnon's family was told many times that she wouldn't reach many millstones after being diagnosed with Cystic Fibrosis a rare genetic condition that shorten many individuals lives. On this episode Jennifer discusses her CF journey rising twin girls despite fertility challenges, how treatment methods for CF and mental health have evolved, her work with her CF chapter in Maryland and so much more. To see how Jennifer McKinnon lives her best life with grit and grac...
Guest: Jennifer McKinnon
129
May 14, 2025
Post-OP Rewiring with Kim Black
Lets be honest having surgery isn't fun, nobody wants to go under the knife but, more often then not surgeries are successful out bodies heal and we are told to move along. Regardless of how well an operation goes people are left with scars mental, physical or a combination of both, On this episode I sit down with the founder of Scarred and Fabulous Kim Black as she shares her story of going through successful hip surgery at the age of four, how it took until the age of thirty for the negative m...
Guest: Kim Black
128
May 7, 2025
Combustible Elements with Marie Pontini
We can't control what happens to us in life but we can control how we respond to things beyond our control. Marie Pontini was diagnosed with an aggressive form of Multiple sclerosis (MS) in 2016, has had multiple operations and gone through a lot of pain. On this episode Marie shares how instead of letting the pain from MS define her she choose to embrace the pain of exercise though bodybuilding, working to become the first Canadian female wheelchair competitor on an international stage, at the ...
Guest: Marie Pontini
127
April 30, 2025
From Making to Educating with Katie Spinks
Having children is a challenge from pregnancy to birth and beyond. Every birth is a unique experience for Katie Spinks the birth of her fourth child changed her life forever as she and her daughter nearly passed away from Uterine rupture after being ignored by doctors for an hour. On this episode I discuss with Katie how this event transformed her life as she now educates parents as a Doula and childbirth educator. The complex relationship people need to develop with medical professionals as tre...
Guest: Katie
126
April 23, 2025
Tip of The Cap or Chap-OH with Amelie Chouinard
An old expression goes "Its not about the destination it's about the journey."for Amelie Chouinard her life has always been about adventure from traveling around Quebec, New Brunswick and joining the Canadian Armed Forces just because she could. On this episode Amelie shares the latest parts of her journey adjusting to life as an amputee after a motorcycle accident, creating Chap-OH a store selling hats, ball caps and more with disability representation to help educate people abut disabilities a...
Guest: Amelie Chouinard
125
April 16, 2025
Mom Works Hard to Know Best with Bridgett Farmer
All parents want what's best for their children in terms of happiness, education, and experiences. Bridgett Farmer has had to work extra hard on behalf of her daughter Milla who was diagnosed with Autism and a rare genetic disorder called METTL23. On this episode join us on Bridgett's journey from finding families all over the world with people affected by METTL23 to being a mom of three, and the simple joy of her sheep farm and so much more. To follow along of Bridgett's journey or to learn mor...
Guest: Bridgett Farmer
124
April 9, 2025
Signals Decoded with Sydney Bennett
FND Functional Neurological Disorder is a chronic condition where people can experience seizures and a lot of physical weakness with no signs appearing on medical scans Think of it of it as your brain sending inaccurate signals to your body. On this episode I sit down and decode those signals with Wife, Mom, and Content Creator Sydney Bennett as she shares her journey, from being told her FND was a mental health issue to the challenges of being an ambulatory wheelchair user, military wife, and h...
Guest: Sydney Bennett
123
April 2, 2025
Big Things Come in Fun Sized Packages with Alicia Grace Chenier
Alicia Grace Chenier has never let her size or the challenges she faces stop her from perusing her dreams. Diagnosed with a benign brain tumour as a baby which caused blindness in one eye and tunnel vision in the other Alicia has always wanted to change the way we see assistive devices. On this Episode join us on her journey from multiple surgeries to improve her quality of life, studying Early Childhood Education, to being inspired by the animated film How to Train your Dragon to work in the Vo...
Guest: Alicia Grace Chenier
122
March 26, 2025
Gather around The Campfire with Emily Sullivan
We all want to feel like we belong, like we have a place in the world full of people we can connect with. Emily Sullivan struggled with CMT Type 1A, bullying in school and a sense of isolation until she watched the 1994 film Forrest Gump her first experience seeing a person with a disability succeed. On this episode join us on Emily's journey falling in love with films, navigating CMT to her discovery of Camp Footprint, to working on an upcoming documentary about Camp Footprint a summer camp for...
Guest: Emily Sullivan
121
March 19, 2025
Accessibility Gets Punked with Cynthia George
We all deserve to enjoy life and party however, having a disability can present several challenges. Despite the challenges of Autism a dealing with a traumatic brain injury Country Punk singer Cynthia George has been using her experience with prevention science to help improve the accessibility in the Nashville night life scene. On this episode join us for a great conversation about Punk music, the importance of self care, her work with RAMPD organization and so much more. To check out the work ...
Guest: Cynthia George
120
March 12, 2025
Going on a Reggae Odyssey with Clint Warren
Music is something that connects people together from all parts of the word. Clint Warren was born in South Africa and always had a passion for music from playing guitar to singing. On this episode join us as Clint shares his journey moving from South Africa to US, working as a lawyer to help provide for his family serving in the peace core and the US Marines after the events of 911 to traveling around the world to discover the roots of Reggae, To check out Clints music click the links below. ht...
Guest: Clint Warren
119
March 5, 2025
Feeding the Flames of Empowerment with Vahen King
In our twenties we all deal with a level of uncertainty about the future for Vahen King her future was forever changed when she became disabled after contracting Transverse Myelitis, a virus that left her physically disabled and dependent on the use of a wheelchair. On This episode follow along on we go on Vahen's journey from learning to accept this new version of herself, how through the love of family and her faith helped her become the woman she is today. A Wife, the First ever Miss Wheelcha...
Guest: Vahen King
118
Feb. 26, 2025
Fruitful Conversations with Michelle fruhschien
Relationships can be complicated especially without patience, communication, and understanding. On this week's episode join me and medical mom Michelle Fruhschien as we discuss her journey from teaching English, switching to Special Education, to finding out her daughter was diagnosed with Jordan's Syndrome an incredibly rare genetic disability. We also discuss the importance of encouraging children to ask questions, to include, and respect members of the disability community at a young age, the...
Guest: Michelle fruhschien
117
Feb. 19, 2025
Light, Camera, Accessibility with Emma Hollywood
Emma Hollywood has always loved preforming since the age of nine. While preforming on stage many people began to recognize that Emma wasn't feeling well, after testing she was diagnosed with P.O.T.S. and Chronic Fatigue Syndrome. Despite these challenges Emma's passion for preforming has never disappeared she has received work on BBC's Doctors and The Reckoning On this Episode Emma shares her struggles, her career and the importance of communication with cast and crew in preforming, To follow al...
Guest: Emma Hollywood
116
Feb. 12, 2025
Rolling Through Romance with Vic and Jesse
Relationships can be complicated and take time to build, but through patience, communication, and determination beautiful relationships can blossom. On this episode join me, Victoria Berezovich and Jesse Bouchard as we roll through their journey as a disabled couple and the challenges that come with it. We discussed a variety of topics from navigating date activities while dealing with Cerebral Palsy and Charcot Marie Tooth Disease respectively, sports participation in Rugby, bowling and the spe...
Guests: Victoria Berezovich , Jesse Bouchard
115
Feb. 5, 2025
Creators Assemble with Colleen Cosplay
February is here and Valentine s Day comes with it so, this we will be talking about the importance of relationships within the disability community . Colleen has had a challenging relationship with her body over the last few years as hyper mobility syndrome has effected her in multiple ways on this episode Colleen shares how cosplay and creating wheel chair adaptable costumes gave her a sense of joy during her struggle on not only dealing with the pain but having to wait years for her condition...
Guest: Colleen
114
Jan. 29, 2025
Be Chronically Kind to Yourself with Emily Woodward
Chronic illness can be difficult to navigate both from a doctors point of view and as a patient. On this episode join me and Emily Woodward A.K.A. Chronically Creative EM as she continues to meet with specialists and medical professionals to try and discover all of the challenges she' facing today. When she isn't seeing doctors you can find Emily doing some modelling, charity work, or simply trying to catch them all watching Pokemon . Be on the lookout for her book The Easy to Read Chronic illne...
Guest: Chronically Creative Em
113
Jan. 22, 2025
Attitude Adjustments with Zachary Weeks
Change takes time whether you preform small or, large acts of kindness in your community you are trying to change attitudes in a positive way. On this episode join me with disability issues spokesman Zachary Weeks as we talk about our shared journey as two people with Cerebral Palsy, how we are both trying to change people attitude and expectations around members of the disability community and so much more. To check out the work Zachary has done across Alberta and beyond click the links below a...
Guest: Zachary Weeks
112
Jan. 15, 2025
Set Your Career on F.I.R.E with Angela Tipton
F.I.R.E. Financial Independence Retire Early Despite a diagnosis of Crohn's disease at 19 Angela Tipton has worked hard to achieve her dreams working in the scientific community as a Molecular Biologist, Research Scientist, and Laboratory Manager on this episode Angela shares her journey and the science behind living and working on your own terms. to get your free ebook “7 Ways To F.I.R.E. Your Career or to check out Angela's other projects click the links below. https://fireyourcareer.com ht...
Guest: Angela Tipton
111
Jan. 8, 2025
No Sugar Coating things with Mike Collins
We hope everyone had a safe and happy holiday season now if you planned on making a lifestyle change in 2025 we have a solution. Join me on this episode with Mike Collins The Sugar free man who for 30 plus year been helping people cut back or quit sugar in 90 days. Through providing emotional support, eating whole foods, and by going at your own pace you can change your life for the better. To get your free copy of the book The Last Resort Sugar Detox, to figure out if you are a sugar addict, or...
Guest: Mike Collins