Jan. 17, 2024

How To Best Handle Those Common Repetitive Behaviors | TLA0040

How To Best Handle Those Common Repetitive Behaviors | TLA0040

Lisa explains how repeating questions and stories is a very common behavior in people with Alzheimer’s disease and related dementia, but one that can be a huge source of frustration for loved ones and caregivers. Why Do They Do This? Lisa shares with her audience some of the factors related to repetitive behaviors and why it occurs. Some examples that she discusses are:

  • How memory impairment plays a direct role.
  • How communication difficulties contribute to repetitive behaviors.
  • How anxiety and disorientation can trigger repetitive behaviors.
  • How understanding the best practices for responding as well as the underlying reasons for repetitive behaviors are so important.

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About the Host:

Author Lisa Skinner is a behavioral specialist with expertise in Alzheimer’s disease and related dementia. In her 30+year career working with family members and caregivers, Lisa has taught them how to successfully navigate the many challenges that accompany this heartbreaking disease. Lisa is both a Certified Dementia Practitioner and is also a certified dementia care trainer through the Alzheimer’s Association. She also holds a degree in Human Behavior.

Her latest book, “Truth, Lies & Alzheimer’s – Its Secret Faces” continues Lisa’s quest of working with dementia-related illnesses and teaching families and caregivers how to better understand the daunting challenges of brain disease. Her #1 Best-seller book “Not All Who Wander Need Be Lost,” was written at their urging. As someone who has had eight family members diagnosed with dementia, Lisa Skinner has found her calling in helping others through the struggle so they can have a better-quality relationship with their loved ones through education and through her workshops on counter-intuitive solutions and tools to help people effectively manage the symptoms of brain disease. Lisa Skinner has appeared on many national and regional media broadcasts. Lisa helps explain behaviors caused by dementia, encourages those who feel burdened, and gives practical advice for how to respond.

So many people today are heavily impacted by Alzheimer's disease and related dementia. The Alzheimer's Association and the World Health Organization have projected that the number of people who will develop Alzheimer's disease by the year 2050 worldwide will triple if a treatment or cure is not found. Society is not prepared to care for the projected increase of people who will develop this devastating disease. In her 30 years of working with family members and caregivers who suffer from dementia, Lisa has recognized how little people really understand the complexities of what living with this disease is really like. For Lisa, it starts with knowledge, education, and training.

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Transcript
Lisa Skinner:

Hi, everybody. Welcome back to another new episode of the truth, lies and Alzheimer's Show. I'm your host, Lisa Skinner. And I am once again very honored to continue our exploration of the multi faceted world of Alzheimer's disease. This is where we delve into the complex and often misunderstood world of Alzheimer's disease and related dementia. I'm here for you to navigate through the truths, the myths and challenges surrounding this condition. So join me now, as we explore the latest research, share personal stories and provide valuable insights into what living with Alzheimer's disease and related dementia is truly like for people who have it. Whether you're a caregiver, a health care professional, or someone impacted by Alzheimer's disease, this show is dedicated to the shedding the light on these truths, dispelling the lies and offering hope in the face of this challenging disease. Stay on today's show, I am going to explain to everybody one of the most frustrating behaviors that we commonly see with dementia. If you haven't guessed what it is, it's repetitive behaviors. I know that it is such a common source of contention with so many family members, and so many caregivers. I hear it every single day. And I've been there and done that too. My mother in law displayed repetitive behaviors, hers are too bad, she liked to tuck and fold a napkin and stick it in her purse. And then she would take it out and then fold, tuck, repeat, fold tuck repeat that was her repetitive behavior. But some of our loved ones will ask the same question over and over and over again in the same conversation as we know. And then others will tell the same story over and over and over again in the same conversation. And we want to go stick our heads in the gas oven. So I am going to give you some insights on how to better manage that situation. And because it happens every single day, to a lot of our loved ones or people that we're caring for. And it is really a source of frustration for all of us. And I'm going to kind of delve into why the repetitive behaviors occur. And then some tips on how to manage it. So it won't drive you as crazy. Okay, so here we go. Repetitive questioning definitely is a common behavior in people with Alzheimer's disease. And it can be attributed to several factors related to the cognitive and neurological changes that occur in the brain. And as I said before, many many, many of us feel very frustrated. It's one of the biggest sources of frustration of this disease that we all experience as a recipient, am I right? Okay. So one of the things that occurs, and why and triggers repetitive behaviors is the impairment on their memory. Alzheimer's disease often leads to significant memory loss, as we know, it's a hallmark of Alzheimer's disease, particularly in the short term memory. As a result, individuals with Alzheimer's disease may forget that they've already asked you the question and possibly receive the answer that you gave them, leading them to repeat the same question or the same story multiple times within a short span of time. And I know a lot of us and I'm guilty of it, too. Mom, you just asked me that. I already answered that question. Okay, so the first thing to be mindful of, they don't remember that they asked it 27 times before. So there is a way to kind of change the direction or the course of that behavior. And I'll go into that in a little bit. So Maybe they're having communication difficulties. Alzheimer's disease impairs a person's ability to process and retain information, as well as express themselves effectively. The individual may ask the same question repetitively as a way of seeking reassurance, or trying to make sense of their surroundings, emotions or experiences. So in other words, some of the repetitive behaviors that we experience are triggered because they're feeling scared, and they're feeling insecure. And this helps calm them. So keep that in mind. Now, anxiety and disorientation which we know are common symptom ologies of Alzheimer's disease and dementia, that can trigger repetitive behaviors. People with Alzheimer's disease may experience heightened anxiety. We all know that, or confusion. We all know that, especially in unfamiliar or over stimulating environments. Repetitive questioning can be a way for them to seek comfort, gain a sense of control that they feel that they are have lost or are losing, or ground themselves in the present moment. Loss of inhibition, which happens with Alzheimer's disease, it can result in the loss of inhibitory control leading to repetitive behaviors, such as asking the same question repeatedly without the individual being fully aware of their actions. I hear from a lot of family members that it's not just repeating the same question but telling the same story over and over, which does very commonly happen. It's important now for caregivers and loved ones to approach repetitive questioning with patience, and empathy, redirecting the individual's attention, providing clear and reassuring responses, and creating a calm and structured environment can help manage this behavior. Additionally, maintaining consistent routines using reminders and engaging them in activities that promote mental stimulation and comfort can contribute to reducing this repetitive questioning. Understanding the underlying reasons for repetitive questioning and Alzheimer's disease can also aid in providing compassionate care and support for individuals living with the disease, while also helping caregivers and family members navigate these challenging behaviors with empathy and patience. So it's not just being patient or compassionate or responding with empathy, but understanding the triggers behind these repetitive behaviors, which I just went over with you. In addition to understanding the reasons behind repetitive questioning in individuals with Alzheimer's disease, caregivers can employ various strategies, and I'm going to discuss that with you knacks to effectively manage this behavior and provide compassionate support. Here are some additional approaches that caregivers can consider when this behavior happens. So first and foremost, maintain a calm and reassuring attitude. If you're stressed. There'll be even more stress they pick up on your emotions they pick up on your body language, your facial expressions, etc. Responding to repetitive questions with patience, reassurance and calm and a calm demeanor can help reduce the individual's anxiety and provide them with a sense of security. I mentioned that a little earlier on. So the other approach is establish a routine and a routine that becomes familiar to them every single day. Creating a mantra and maintaining a consistent daily routine will help individuals with Alzheimer's feel more oriented and secure, potentially reducing the frequency of repetitive questioning. They function best in surroundings and environments of familiarity.



Lisa Skinner:

So Then the next thing is distraction and redirection. So if the repetitive behavior has started, you're not maybe not quite sure what triggered it. But it was one of the things that I mentioned, gently redirect the individuals attention to a different activity. Because one of the things we know that people who live with Alzheimer's disease and dementia, they get locked on to and locked into a thought. And they will hold on to that thought that question that story until they feel that they've been listened to, or that it's okay for them to move on. Sometimes we have to help them move on, they're not going to do it on their own. So they keep asking the same question, or tell you the same story, or fold the same nap again and take it into tuck it into their purse until we fix the broken record. And that's basically what it what it synonymous with. So engage them in familiar enjoyable activities. Or you can provide sensory stimulation that definitely can be an effective strategy for redirection, provide clear and simple responses. So what does that mean? When responding to repetitive questions, it's going to be beneficial to you to offer clear and simple answers. Don't get too much into the weeds or detail or elaborate just clear and simple answers. You can use visual aids, such as calendars, notes, memory aids, and these will also help reinforce the information you are communicating to them. This is really important, validate their feelings and emotions. What does that mean? Okay, acknowledging and validating the individual's feelings and emotions, even if they are expressing the same concerns repeatedly. offer comfort and understanding can definitely help alleviate distress and confusion. And I'm going to give you some examples of some things that you can say to them in just a very short while. So the other thing that you need to be aware of is their physical comfort level. And you need to always be monitoring that ensure that the person you're caring for or your loved one, that their basic needs are met very, very important. That means are they hungry? Are they thirsty? Are they uncomfortable? Is there too much noise or confusion in their environment? Are the lights shining on them too brightly. These are all things that can trigger repetitive behaviors, discomfort and or unmet needs, can and will contribute to increased agitation and repetitive behaviors. So caring for individuals and I don't need to emphasize this you probably already know, caring for individuals with Alzheimer's disease can be so overwhelming and challenging for any of us for all of us. And it's important for us as caregivers, to seek support from other family members, brands, and or support groups. taking regular breaks and finding time for self care is vital for maintaining emotional well being. And even if that means just walking out of the room that the person you care for your loved one is in taking a deep breath, recharging or re energizing yourself is better than staying in that situation and just becoming more and more frustrated. You can also communicate with health care professionals if that is an optional resource for you. But the point is, is this is very, very difficult to do if you are alone or if you feel alone. It definitely takes a village to manage this disease. So don't sell yourself short on that. So continuing on managing repetitive behaviors and individuals with Alzheimer's disease. Again, it requires so much patience from us and all the patients that any one of us can muster up. Even if we have to dig dig dig down to find one last little ounce of patience. And that's not an easy feat, I know. You have to be creative. In your approaches, you have to try different things. And that's the toolbox that I help you assemble. So if one thing doesn't work, you can try something else. And we always want to be mindful that this is a person centered approach to care and to communication, that it's about what works for them, not us or somebody else living with the disease because everybody goes through this disease differently. Here are some very specific strategies for caregivers, or family members that you can use to manage repetitive behaviors effectively. So again, engage them in a meaningful activity encourage the individual to participate in an activity that they enjoy and find meaningful. This could include listening to familiar music together, maybe singing some of the lyrics together, looking through old photographs, that's a great one. Engaging in gentle exercises, and or participating in simple hobbies. meaningful activities can help redirect the individual's focus and reduce repetitive behaviors. Set them on a different track, as I said, create a calm environment. This is huge. And a lot of people don't realize that these are triggers of these type of behaviors and agitation and anxiety. It's noisy, noisy environment, distractions, clutter in the environment to create a peaceful and organized space, or at least their perception of that. You can play soft background music, pleasant aromas in their environment, and offer them familiar objects that can contribute to a calming atmosphere. Provide simple choices once again, utilizing memory aids, such as labelled drawers or cabinets to help the individual locate essential items independently. They're losing their independence day by day by day. And that is a very scary thing for most. So help them stay as independently as they possibly can, without loading them up with too difficult of tasks because that's frustrating for them too. So ways you could accomplish this is by providing visual cues such as signs indicating the location of a bathroom, or the dining area, and could also assist in reducing confusion and repetitive questioning. The next thing you can try is offering transitional objects. So that means you're providing the individual with a comforting items such as a favorite blanket, a stuffed animal, a momento, these items can offer a sense of security and may help reduce repetitive behaviors during moments of distress or anxiety. It's coming comforting to them, it's a security product for them. And then techniques such as gentle massage, we already discussed aromatherapy or redirecting their attention to something else. When the individual engages in repetitive behaviors, gently redirect their attention to a different activity or topic. For example, if the individual is repeatedly asking about a specific event, transition the conversation to a different pleasant memory or topic of interest. Mom, tell me about this dad.



Lisa Skinner:

Tell me that story again, when you were young, and you were in World War Two, and see if he comes up with a story. Communicate with empathy. That means approaching the individual and understanding where they're coming from that this is difficult for them to communicate and they're trying the best they can. And a lot of times because they can't articulate their thoughts, their expressions, their wants, their needs. They're going to express them the only way that they know how to to resort to in that is in these behaviors that show with this disease by implementing these strategies and remaining tuned in to the individual's unique preferences, again, the custom approach to care person centered approach to care and responses, you as family members and caregivers can help mitigate these repetitive behaviors and create a supportive environment for individuals living with Alzheimer's disease and related dementia. In addition to the strategies mentioned earlier, caregivers can consider the following approaches to effectively manage repetitive behaviors in individuals with Alzheimer's disease, you can provide purposeful engagement. In other words, encourage the individual to engage in a purposeful activity that aligns with their abilities and interest. So you, you need to be aware of their skill levels, and then offer them something that they can feel that is accomplishing for them. If it's too difficult, they will get frustrated, and that'll increase their anxiety. But this could involve very simple tasks such as allowing them to fold the laundry, setting the table, watering some plants, which can provide a tremendous sense of accomplishment and reduce their restlessness and their anxiety. People need to feel that they have retained a purpose in their life. Even people living with Alzheimer's disease and dementia, it never goes away. It's a very, very basic human instinct in every single one of us. So it could be something so simple, but so meaningful to them. So don't project what you think is meaningful into what they might believe is meaningful, because they're worlds apart based on their cognitive decline. Use reminiscence therapy. I've gone over this before in previous episodes. But just as a reminder, reminiscence therapy involves discussing their past experiences, sharing stories with them, and looking at old photos and momentos. This can be so valuable to help them engage in meaningful conversations, and redirecting their focus away from the dreaded repetitive behaviors, offer them snacks and hydration very important for the elderly, ensuring that the individual has access to healthy snacks. And the other thing you want to do is remember that acknowledging their feelings can foster a sense of security to reduce their anxiety, which may help decrease repetitive behaviors, monitor their medications and health if this could be a reaction to a prescription medication. Again, maintain clear communication, encourage physical activity, you might want to have them do some chair exercises, stretching exercises, that's good for everybody to do every single day. Create a comforting bedtime routine for them. Maybe end the day with some hand massage so it relaxes them. And then foster social communications with their peers, their friends, do family member facetimes, things like that. Don't forget you need to practice self care, you will not survive this without that. Or having a backup plan for somebody that can give you a respite arrest a little bit of time off. By implementing these diverse strategies and remaining attentive to the individual's unique needs and responses. We as caregivers and family members will create a supportive and enriching environment for individuals living with Alzheimer's disease, ultimately contributing to their overall well being we know this is a fact. So before I end today's episode, I want to share with you some of the ways that you can validate their feelings This is very important because they're feeling scared they're feeling insecure. One acknowledge their emotion Since you can say something to the effect of, well, it sounds to me like you're feeling upset about not being able to visit your childhood home. I understand how important those memories are to you. And you probably that triggered a thought, yeah. My mom's always asking for me to take her home. But that's in her reality. So that's a good way to kind of validate her feelings of insecurity, reflecting their feelings, I can see that you're feeling anxious about the upcoming doctor's appointment. But you know what, it's totally okay to feel that way. And I am here to support you. Validating an experience. It seems like you're recalling a happy moment from your past. I'd love to hear more about that special memory. If you would like to share that with me now affirming reality based emotions. I see that you're feeling worried about finding your way around. Well, that's perfectly natural to feel that way in a new place. We've all been there, done that. And I'm here to help you navigate that. So don't worry. Expressing understanding, I understand that you're feeling frustrated, because you can't remember where you put your glasses. It's okay, come on. We'll look for them together, and I'm going to help you find them. And then the last one, respecting an individual's perceptions. So you as a family member or caregiver can respond with something along these lines. You believe that your old friend is coming to visit today, because that's what they keep telling you. That sounds wonderful. I'm glad you're looking forward to spending time with them. I am too. So these are specific examples of how validation techniques involve empathetic listening, acknowledging the individual's emotions and experiences and responding with understanding and compassion can make a world of difference to them and to you because you're going to feel less anxious and stressed out too. By employing validation. caregivers can create a supportive and comforting environment, fostering trust and emotional wellbeing for those individuals living with Alzheimer's disease and related dementia. So that's our episode for today. Thank you all again for being here. I love bringing new helpful information of how your lives can be a little easier to manage if you are caring for somebody with Alzheimer's disease, or have a loved one who's living with Alzheimer's disease or related dementia. I will be back next week. And I hope you have a wonderful week. Thanks again for being here. Bye bye.