Episodes

Meet CTNNB1 mom, Megan Hieb. For her daughter Lucy's first birthday she decided to do a GoFundMe page that has made over $112,000 for CTNNB1. See her video at https://www.youtube.com/watch?v=ei3uEtG5n-M . Megan mentions in ou...

This is what this is all about, our children. Please enjoy this mini episode as Preston, age 12, shares some of his feelings about having CTNNB1.

Toni Paes is a mother of four from Oklahoma. Her youngest Bella has CTNNB1. Even with all the experience and success she has had parenting her children, she still has days where she feels like an imposter. It's easy to feel ...

Patrice Bradley joins me today to share about her daughter Alyssa. Alyssa wasn't diagnosed with CTNNB1 until she was 13 years old. She is now 18 years old and a senior in high school. Patrice shares some real moments and advi...

CTNNB1 mom Heather Murphy joins me today to talk about parenting a rare child with special needs as a single mother: the difficulties it brings and tips on what has helped her.

I’m excited to have another CTNNB1 mom on with me today. Fraser, mom of Makayla, is a Health Recovery Coach, Integrative Health Practitioner & has a Kids Natural health Podcast. Follow Fraser Bridgeman on Facebook for many t...