You, Me, and HAE
You, Me, And HAE is a promotional podcast series exploring topics on the minds of patients with hereditary angioedema (HAE). Each episode features patients with HAE as they share their unique disease journeys, management challenges, and finding an on-demand treatment that works for them. Also, practical tips in navigating conversations with your health care provider are shared, with a special feature from Dr Jack Eades, an allergy/immunology expert in HAE. These conversations also include a discussion of RUCONEST® (C1 esterase inhibitor [recombinant]), an on-demand treatment option for adult and adolescent patients with HAE.
Recent Episodes
4
July 3, 2025
Aaron: Managing My Breakthrough HAE Swells
Welcome to the fourth and final episode of You, Me, And HAE! On today’s episode, Aaron shares his experience with hereditary angioedema (HAE), including how he handles breakthrough HAE swells while receiving prophylactic treatment. Aaron also describes his use of RUCONEST® (C1 esterase inhibitor [recombinant]), an on-demand HAE treatment for people over the age of 12 years, to manage acute swells and discusses how RUCONEST helps him get back to the things that matter. If you would like to lea
3
June 20, 2025
Alex: Finding an On-Demand HAE Treatment That Works for Me
In our third episode of You, Me, And HAE, Debbie and Alex discuss how they navigate living with hereditary angioedema (HAE), including how they found an on-demand treatment that works for them. Alex shares her journey learning how to confidently self-inject RUCONEST® (C1 esterase inhibitor [recombinant]), an on-demand HAE treatment for people over the age of 12 years, with the resources available through RUCONEST SOLUTIONS™. Cindy is one part of this Pharming support team and discusses in this e
2
June 6, 2025
Kelly: Living With My HAE
Join us for another episode of You, Me, And HAE ! Our host, Debbie, welcomes Kelly as they talk about their experiences living with hereditary angioedema (HAE), from identifying swell triggers to staying prepared for an HAE swell. Kelly is also joined by Dr Jack Eades, an allergy/immunology specialist with a focus on managing HAE. Together, they highlight the importance of regularly talking to your doctor about your HAE. Last, Kelly shares her personal journey using RUCONEST® (C1 esterase inhibi
1
May 12, 2025
Tequoia: My HAE Diagnosis Story
Welcome to the first episode of You, Me, And HAE! Today, Tequoia will share her journey to a diagnosis of hereditary angioedema (HAE), including her experience learning about what HAE is, how it occurs, and the different types of HAE. Tequoia will also describe her use of RUCONEST® (C1 esterase inhibitor [recombinant]), an on-demand HAE treatment for people over the age of 12 years, to manage acute swells and discuss how RUCONEST helps her get back to the things that matter. If you would like
Join the Email List
Listen On
