Oct. 2, 2023

Tourette Syndrome advocacy – with Jhonelle Bean

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Tourette Syndrome advocacy – with Jhonelle Bean

Jhonelle Bean is a 28-year-old disability advocate living with Tourette Syndrome and PTSD. Jhonelle shares her experience with Tourette Syndrome through social media to educate others and help destigmatize the condition, especially within communities...

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Jhonelle Bean is a 28-year-old disability advocate living with Tourette Syndrome and PTSD. Jhonelle shares her experience with Tourette Syndrome through social media to educate others and help destigmatize the condition, especially within communities of color. She has also created a community called "For The Advocates," where other disability advocates can find a place to relate and get support and resources from each other.

During this episode, you will hear Jhonelle talk about:

  • Her first tics in childhood and adolescence, and the reactions of the people around her 
  • Why it took so long for her to get a Tourette’s diagnosis
  • How she decided to become a Tourette’s advocate online 
  • Some common misconceptions about Tourette’s  
  • Her advocacy about Tourette's and communities of color
  • Why she created the "For The Advocates” community

Follow Jhonelle on Facebook, Instagram, TikTok, YouTube and Twitter.
Follow For The Advocates on Instagram.

Watch the video of this interview on YouTube.

Read the episode transcript.

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*Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations.*