CMT Episodes

Come and meet Season Ciriello. A wise and vibrant 16 ear old who is adjusting to the fact that she now has a disease, and it helping others along the way. She reminds us that people can sometimes adjust easily to challenge and sometimes it takes a lot...

Today we sit down with Rai Ganesan. A young woman who will leave you feeling hopeful for the future. She tells us about the life of an adopted child who finds out that she has a hereditary disease and has to navigate those waters on her own. She is...

Today we meet Annabelle Ensor. Seventeen year old new member of the CMT community and a walkin talkin example of why the future is so bright. The amazing young woman was diagnosed with a disease six weeks ago and in that time, has written for a...

Today we meet my amazing friend Erin Weierbach. CMT Patient, champion of disabled youth and mother to a son with CMT. We talk about the choice to have kids, the news that her son has CMT and how that affects decisions for additional kids. Her attitude...

Today we continue our Pandemic Positives series as we meet Erica Berger-Brandt. Amazing therapist, Authentic Soul, and my very own sister. We tlk about our childhood, her path as a therapist, and how Covid has affected the therapy industry...

This is an episode not to miss. Today we welcome Maria Maisonet. Former student of the University of New Haven. She chose to leave the school after a series of experiences with inaccessibility.

This episode is a real treat as we sit down with Bernadette Scarduzio, Social Media Coordinator for the Hereditary Neuropathy Foundation. In addition to her title, resident badass is perfectly fitting as well. She has a remarkable story to tell and an...

I have a friend. He’s funny and charming. He is a brilliant mind. In fact he is one of the world’s leading researchers for my disability. And I can’t wait to introduce you to Dr. Mike Shy. Come learn all there is to know about CMT and what it is...

The human tornado, Jeana Sweeney is our guest on this intimate conversation with a true Rockstar. Jeana has Charcot Marie Tooth and has devoted her career to the CMTA. She is on a mission to fund the cure and she doesn’t take no for an answer. Join...

This time o' year, my thoughts turn to thankfulness. Now more than ever it is key to count your blessings and to remember how many others have it worse. We chat about my Bubbe's amazing journey to the U.S. and we discuss the power of focusing on the...

Now more than ever, we need a reason to be hopeful for the future. Welcome to Erin Black. This young woman is the embodiment of the future is bright. We get into her challenges, her philosophies, her wisdoms, and the many ways that she is on this...

I have known Bethany Meloche for many years and I would best describe her as a lion with sheep's feet. There is a power about this soft spoken woman that is amazing to participate in. We cover her disability, her wisdom, her humor, and her magic. She...

My dear ole mom, Marilyn joins me on the show to talk about my childhood, her path with discovering disability in our family, and parenting through a physical challenge. My mom has always been an amazing person and I think you will love this chat with...

An honest discussion of the human spirit, the value of a positive attitude, and how strength can be found in the weakest of places. This podcast journey will take you beyond your comfort zone to where you start to really learn about yourself and your...